No News is Good News

Hi All,
I haven’t written my blog in ages just because I have been trying to get back to as normal a life as possible and I don’t think you guys want to hear about my day to day activities! I get very excited about very little achievements so I dont want to bore you with it all!

I’m doing well and have gotten some amount of energy back. From November to February I was extremely tired. It’s hard to explain the type of tiredness, it’s not sleepy tired its sheer exhaustion where I can’t do anything but sit on the couch. Usually if I have a day like that I just accept it and by the next day I have a bit more energy again and others I just sit and cry about how the hell this happened at all.

My hospital visits are still very regular, I’m up here three times this week but usually it’s once or twice. They had changed me to once every two weeks but my doctor changed some of my medication recently and they need to keep a closer eye on me. Each tablet has about 70 possible side effects so it all depends on the bloods.
I’m trying my best to get on with things and get back to some sort of normal life so yesterday I drove myself up to my Doctors. I spent the rest of my day lying on the couch as I haven’t driven myself in nearly a year but I was delighted with myself. They have also relaxed some of my banned foods including salad and unpeeled fruit which is great news. Peeling a strawberry had its challenges (thanks Dee!). I am also allowed out a bit more now that flu season has peaked.

It’s very hard to write the blog now because I’m at this in-between stage where I can slowly do so called “everyday” things to you but that are my full day’s activity. My head is willing me to just be able to go into work and get back to normal but my body is lagging behind with tiredness. That can be very frustrating.

I am so excited about hopefully growing in strength and energy and am really looking forward to the summer (especially a BBQ in Stephens) as I spend all last summer in isolation. I am still so excited to hear airplanes and general outside noises, which I’m sure, is very irritating to hear me go on and on about the sky and birds! You’ll be glad to know Stephen and I still do date night most weeks, and we are trying to get back to some sort of normality little by little.

Struggling a bit with my appearance because I don’t really think I look like I used to look at all. My hair is dark brown and curly and obviously very short. I have had people walk by my or look at me as if they know me from somewhere but don’t really recognise me which is awkward but I am delighted to have hair and to just be keeping well physically and I need to just concentrate on that.

That’s it for now I guess.
Lots of love,
Mairéad xx