I know I gave an update yesterday but I wanted to do another one today and everyone is always telling me to do more!
My bloods have started to recover as of yesterday which meant I could walk around the ward with no mask and could leave the ward with a mask on which was really exciting. Usually once this happens it means you've one step out the door to a few days at home and in my case a bit longer as I prepare for transplant.
Then this morning they said I could get home for the day and as I was getting ready they got my blood test back back and said they had dropped again meaning it is too dangerous for me to go out. I am back to wearing a mask at all times outside my room. I know its for my own safety but I was so gutted. Had a good old cry with my mom and noticed that my eyelashes were all over my hands- so I have chalked this up as not a great day!
I'm grand now- just ordered my din dins- chicken curry and a cuppa tea and I know this is just a blip in the road to getting home. My eyelashes did take a beating though so only have a few left- damn it!
My mom starts radiotherapy this afternoon too so Clare is going with her, again I dont know how Clare is doing all this. Not only my donor but looking after me and mom too! She's just amazing.
Adam came in to keep me company one night last week, kept me up chatting until 1am. He is still working on my room but its almost done I think. They found something like 60 handbags under my bed so I can't wait to see what they are and which ones I had forgotten about...probably 58!
So thats all my news for today. Think I will go and knit a bit. For those of you who are wondering what I am knitting its a straight line so far so I'd imagine it will turn into a really skinny scarf for Dawns little man, Percy!
Lots of Love,
Mairéad
PS Thanks for listening to me being a moany bum xx
PPS Date night is still going strong and on Saturday we watched The Hangover, I got very giddy after! Forgot how funny it was.
Monday, August 9, 2010
Sunday, August 8, 2010
Groundhog Day
I haven’t done a blog in a while because it’s like groundhog day in here and I have been really struggling with the isolation this time. It is horrible waking up each day knowing that nothing is going to happen and I am only going to leave the room twice maximum to go for a walk in my ward. I went for 5 walks yesterday.
I just can’t stand that the same thing happens each day. I get woken at 6 for blood tests and from then on I know people are going to be in and out, caterers, cleaners or doctors. I have also had some issues with the sound proofing in this room in that I can hear the man next door to me vomiting which has been the most unpleasant thing about my stay so far. He vomited every day for the 1st two weeks pretty much and he is what the nurses call an “aggressive vomitter”- it’s like something from family guy or south park- horrific. That usually happens from 6am too so the IPod shuffle has been a god send I just blast it in my ears to drown out the noise. Luckily he hasn’t done it for the last 4 days so I’m hoping he’s over the hump of it now because it really is awful.
Two of the girls from work came in to visit me last week which was brilliant and they brought lots of goodies for me which was amazing! It was great to talk about work and normal things- it was almost normal again. They explained how they were all told and I was really touched with how kind people were when they first found out, I’m sure lots of tea was made- I wish I could have been there!
I don’t know why but this week I have really missed my hair too. I can’t wait to get home to wear my wig; I have started to get the hang of accessorising it and making it look natural. I just wish I had my own and can’t imagine how excited I will be when it eventually starts to grow back, which won’t be for a long time. My mom’s is growing back now and it looks brilliant. She’s pretty excited about it too.
I don’t really feel like I settled in to being here this time. The last time I was able to just take it day but day but since I got in here I have been itching to get out and home. I have taken up knitting to try and pass the time and have so far knitted a straight line, which lucky nurse is going to get that!
I had problems with my lines too while here this time. I’m not sure if I’ve explained the lines properly but basically they put a tube into my arm or chest that means they can take blood from there and give me any medication. I had the one in my chest in originally (the hickman) but that got infected so I had one in my arm (the picc). It caused a blood clot in my arm so it had to be pulled half way through my chemo and I had to get one put in the other arm but that caused another clot so I had the hickman put back in last Friday so I’m delighted with that. Its easier and more stable for them to use so I am taking extra good care of it!
I feel like I’m being a big moan in this but I guess that’s what the blog is for.
Thanks again to everyone who has contacted me and sent stuff in to me and thanks to all the family for keeping me company in here, I know we’re all pretty much living in here now but the visits are what get me through the day.
Lots of love,
M xx
I just can’t stand that the same thing happens each day. I get woken at 6 for blood tests and from then on I know people are going to be in and out, caterers, cleaners or doctors. I have also had some issues with the sound proofing in this room in that I can hear the man next door to me vomiting which has been the most unpleasant thing about my stay so far. He vomited every day for the 1st two weeks pretty much and he is what the nurses call an “aggressive vomitter”- it’s like something from family guy or south park- horrific. That usually happens from 6am too so the IPod shuffle has been a god send I just blast it in my ears to drown out the noise. Luckily he hasn’t done it for the last 4 days so I’m hoping he’s over the hump of it now because it really is awful.
Two of the girls from work came in to visit me last week which was brilliant and they brought lots of goodies for me which was amazing! It was great to talk about work and normal things- it was almost normal again. They explained how they were all told and I was really touched with how kind people were when they first found out, I’m sure lots of tea was made- I wish I could have been there!
I don’t know why but this week I have really missed my hair too. I can’t wait to get home to wear my wig; I have started to get the hang of accessorising it and making it look natural. I just wish I had my own and can’t imagine how excited I will be when it eventually starts to grow back, which won’t be for a long time. My mom’s is growing back now and it looks brilliant. She’s pretty excited about it too.
I don’t really feel like I settled in to being here this time. The last time I was able to just take it day but day but since I got in here I have been itching to get out and home. I have taken up knitting to try and pass the time and have so far knitted a straight line, which lucky nurse is going to get that!
I had problems with my lines too while here this time. I’m not sure if I’ve explained the lines properly but basically they put a tube into my arm or chest that means they can take blood from there and give me any medication. I had the one in my chest in originally (the hickman) but that got infected so I had one in my arm (the picc). It caused a blood clot in my arm so it had to be pulled half way through my chemo and I had to get one put in the other arm but that caused another clot so I had the hickman put back in last Friday so I’m delighted with that. Its easier and more stable for them to use so I am taking extra good care of it!
I feel like I’m being a big moan in this but I guess that’s what the blog is for.
Thanks again to everyone who has contacted me and sent stuff in to me and thanks to all the family for keeping me company in here, I know we’re all pretty much living in here now but the visits are what get me through the day.
Lots of love,
M xx
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